![]() ![]() Without a specific code several things can happen that can be detrimental for our patient population. You may wonder why it is important for a rare disease like Dravet syndrome to have its own unique ICD-10 codes and why our community worked so hard to acquire them. G40.834 Dravet syndrome, intractable, without status epilepticus.G40.833 Dravet syndrome, intractable, with status epilepticus.Severe myoclonic epilepsy in infancy (SMEI).Since 2018, DSF has worked with its Medical Advisory Board to obtain ICD-10 codes specific to Dravet syndrome, and we were pleased to receive confirmation this week from the CDC that codes for Dravet syndrome have been approved and will become effective (FY2021) on October 1, 2020. In the US, proposals for additions or revisions to the current ICD are heard each March and September at a live meeting hosted in Baltimore. Codes approved for ICD-10 will be inherited into ICD-11. ICD-11 was presented by WHO in May 2019, and will go into effect on January 1, 2022. Work began on ICD-10 in 1983, and it took effect in 1994. There have been revisions to the system over the years, so when we use the term ICD-10 it means the list currently in use is the 10th revision. It is a system used by healthcare providers to classify and code diagnoses, symptoms, and procedures recorded in conjunction with hospital care in the US and it is important for health insurance reimbursement, administration, epidemiology, and research. The International Classification of Disease (ICD) is a list first introduced in1948 by the World Health Organization (WHO) and is coordinated by the Centers for Medicare & Medicaid Services (CMS) and the Centers for Disease Control and Prevention (CDC). The content below is courtesy of the Dravet Syndrome Foundation. The diagnostic codes will be incorporated into the ICD revision set to be published on October 1, 2020. ![]() The codes will help to facilitate new clinical trials, as well as improve the billing and reimbursement associated with health insurance. The World Health Organization (WHO) has designated new, unique disease codes for Dravet syndrome, as well as for CDKL5 deficiency disorder (CDD), which will be added to the International Classification of Diseases (ICD). ![]()
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